Building on what people with dementia and their carers have already told us. Our Population Needs Assessment highlighted the importance of support and social interaction for people with dementia and their carers.

Being able to access the right information is important, and people need ways to find contacts, services and support easily.

People also would like more awareness about dementia in communities, so people with dementia and their families can feel safe, connected and supported in their local areas.

Looking back to move forward

We have worked with people with dementia, carers and professionals to look at what matters to them. By gathering this knowledge, we have identified priority themes to place actions against that will improve health and social care services.

How we have involved people with dementia, carers and professionals

We have held a number of events to look at ways to improve services and support for people living with dementia, including:

  • A series of hackathons to inform our plans (hackathons bring professionals and people with lived experiences together to look at ways to tackle issues and challenges)
  • A co-production workshop to map pre and post diagnosis journeys for people with dementia to identify good practice and ways to improve this experience
  • A workshop to look at Memory Assessment Services to influence an improved way of working
  • An immersive hydra minerva session with professionals and people with lived experiences
  • Took part in ‘Turn Ponty Blue’, to recruit community listeners

Bringing all the information together

Most recently, we held a hackathon to look at all of the information we have gathered, and identify what actions need to be taken forward. We looked at: getting the right information and support, the journey to diagnosis and life after diagnosis

How can services be improved?

In summary, people living with dementia, their families and carers would like:

  • Practical support for carers on how to support their loved one, how to talk to them and how to care for them, including establishing routines
  • Access to accessible information and for services to be joined up
  • More education for the person with dementia, their families and staff to ensure the right information and support is being provided
  • Social opportunities after diagnosis to maintain their identities
  • Memories and moments to be used as conversation starters to support people staying true to their identity. This should be incorporated into environments where people are receiving care and support, so we are capturing the things that are special and important for people with dementia

You can read a summary around each area below. 

Getting the right information and support

“You can’t have good support without information on what people need from their perspective.”

  • People with dementia and carers would like support pre and post diagnosis to help them understand more about living with dementia, and services and advice available.

Ideas for positive change include:

  • Looking at similar work taking place in the region, and find ways to share resources and ideas
  • Creating inclusive communication materials, and providing counselling, links to community groups, accessible technology and practical advice such as accessing benefits
  • Sharing and celebrating best practice

Journey to diagnosis

“It can be difficult to get people with dementia to engage because of stigma. The diagnosis doesn’t have to be a terrifying label.”

People with dementia and their carers would like support to receive a timely diagnosis, and understand what information and advice is available afterwards.

Ideas for positive change included: 

  • Providing mobile health checks with a cognitive wellbeing assessment as part of this
  • Continue to raise awareness of dementia to reduce stigma, and encourage people to seek a diagnosis

Life after diagnosis

“People need to be supported to maintain their identity.”

People with dementia and their carers want to feel like they can still enjoy their lives and supported to retain their identities and interests.

Ideas for positive change included: 

  • Services to be available in local communities so they are easily accessed
  • Charities to help people with digital skills to broaden their access to support services
  • Create more dementia friendly communities
  • Develop local hubs for carers where they can receive more information e.g. cookery classes, spaces to breathe, connect and develop networks

Want to get involved with improving services for people
with dementia, their carers and families?

You may find the reports below useful.

Population Needs Assessment

We have identified key priorities for our communities in our Population Needs Assessment. Here we explain how we worked with communities to identify these.

Read more

Regional Area Plan

Our Regional Area Plan outlines the actions that will be taken to improve services and support.

Read more

Contributors, Barriers and Solutions to Co-Production

This Our Voice Matters report shows the contributors, barriers and solutions to co-production.

Download here

Co-producing in a crisis

Co-Production In a Crisis: Valuing the Voices of Cwm Taf Morgannwg through the Covid-19 Pandemic'. The report, developed by the Our Voice Matters project, shares examples of good practice and recommendations for embedding co-production in projects

Download here

Enhancing lives by raising standards and improving dementia care

We have launched a new campaign to raise standards and improve dementia care across Rhondda Cynon Taf, Bridgend and Merthyr Tydfil.

Read more

We are proud to be members of
Co-Production Network for Wales.

We are proud to be members of
Co-Production Network for Wales.